Community Children’s Nursing

We support you with nursing procedures that are able to be done safely at home. Our aim is to avoid an unnecessary hospital, GP or outpatient appointments. These are some examples of how we can support your child at home:

• We can arrange for the collection and delivery of clinical tests/samples such as blood testlifetim
• We can arrange for the funding and provision of medical equipment in the home i.e suction or monitoring equipment
• We can help provide support if your child has a feeding tube
• Arranging for sleep studies to be carried out at home
• Care of ports or Hickman lines
• Giving intravenous antibiotics

If you are unsure of who to approach with an issue about your child’s health, we can often be the first point of contact. We often act as a professional liaison, or link person between children and families and other professionals who are involved in their care. If we don’t know the answer to a problem we will try to refer you onto the most appropriate person/organisation.

Examples of people we may liaise with are:

• Community Children’s Nursing psychologists
• GP – e.g. arranging prescriptions
• School teacher and school nurse
• District Nurses – e.g. wound and pressure area care
• Consultants – e.g. with Capnocheck studies
• Occupational therapists – e.g. equipment issues
• Physiotherapist – e.g. exercises
• Health visitors – e.g. weights and child development issues
• Specialist nurse – e.g. specialist advice
• Dieticians – e.g. feed regime or content
• Wheelchair centre – e.g. appointment
• Hospice/respite
• Voluntary organisations – e.g. Respite organisations.
• Social workers – e.g. family support/completing benefit forms.

Roles we may carry out include:

• Facilitating discharge from a hospital admission
• Completing a detailed healthcare plan for school, college
• Drawing up emergency guidelines for a variety of situations
• Training for family/carers/schools on, for example, a new procedure
• Compiling care package proposals for PCT with the continuing care team
• Training, managing and assessing Community Children’s Nursing Support Workers.
• To support the young person through the transition process from child to adult services, to enable transition at 18years of age
• To support families with wishes with end of life care and enable children to live and die in their preferred place of care
• Bereavement support for up to 18 months after a child dies

CCN Transition Leaflet for Young People
CCN Transition Leaflet for Parents